Category Archives: developmental disabilities

Developmentally disabled couple wants kids

Chloe fell in love with and married Jason Ivey. It’s a heart-warming and romantic story. There’s just one notable piece of information to add. Both spouses are developmentally disabled.

Chloe has Down Syndrome. Jason has autism, ADD and bipolar disorder.

“People with autism want to feel important; they want to feel needed. Honestly, it’s magical. That’s how I actually feel,” Jason said in an interview with Special Books for Special Kids, a YouTube channel that promotes understanding of people with disabilities. “Yeah, there’s ups and downs. But I’m telling you Chloe is such a perfect wife. And even when I’m down she lifts me right back up and makes me so happy.”

To see Chloe and Jason talk about marriage and how God brought them together is a moving reminder that God has not made anyone inferior. People with special needs have much to teach others about happiness and simplicity in a world that seems overly complicated to many.

“I feel like I’m hit with a love bug. Sometimes I would say, ‘Thank You, God, for everything, all the positive things,” Chloe says. “I feel like I want to cry. I feel like I’m on top of the world.”

The love oozes from the video. “She is like drop-dead gorgeous,” Jason says. “I was worried, like, ‘Lord, I am way marrying out of my league.’ My goodness! Look at this beauty!”

But their fairytale story also raises unsettling questions the video doesn’t address: Would they have children? Would their offspring be more prone to being born with a disability? Who would care for the children?

“Sometimes I think in my mind ‘I want a baby so bad,’” Chloe says. She has a realistic doll that she treats as her baby. “This is Giselle. She represents what we want for the future.”

Both Chloe and Jason recognize their limitations. They say they are 80% independent, which means that 20% of their adult responsibilities are handled by care-givers, often family members.

In a world where abortion is pressed on parents when an ultrasound reveals a potential disability, in a world where government imposes decisions on private citizens in the name of the common good, some questions linger:

Who decides if they have kids? Should society try to prevent a child being born into a world where foster care is a strong possibility? Find out more: Should developmentally disabled couples have kids?

A NY exec meets a true-life Tarzan boy in Guatemala

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Jamie Waller with Francisco Tzoy, the Tarzan boy

When a New York tycoon met one of the last feral “Tarzan boys” in Guatemala, he knew it was a match made in Heaven.

Jamie Waller, a Wall Street darling who recovered from alcoholism and became a missionary, took on what was to become perhaps his most difficult case, helping a boy who became a savage after he was abandoned following the death of his parents, forced to fend for himself in the jungle.

That boy, Francisco Tzoy – who suffered from mental disability — crawled on all fours and fought off dogs for his food in the dense mountainous terrain of Guatemala. Francisco is now diagnosed with the mental age of a 9-month-old.

Centro-de-estimulacion-integral-guatemalaThanks to God working through Waller and the Guatemalan government, he now keeps his clothes on, stands on his feet, smiles and no longer eats his own excrement.
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“That’s a good success story,” Waller said. “He can sit still, play a little bit. He doesn’t scream all the time anymore. He can participate in group activities. Prayer has been big. People have been praying for him and with him throughout. His infectious smile touches me. When he’s happy, the whole world smiles with him.”

A New Jersey native, Waller started using drugs in boarding school in the 1970s. He drank daily through college. When he started having kids and getting into corporate life, he limited his liquor consumption to weekend drinking.

In 2009, his wife left him. While this was another boat-rocker in his life, it seemed at the same time to open doors for him to travel and do ministry. He flew to Guatemala with his son and visited 10 orphanages. The last hospital he visited so moved him that it became the one he now works in.

Francisco-Tzoy

Francisco Tzoy

 

“It was the Holy Spirit,” Waller said of the remarkable career boomerang. “I worked in New York and wore a suit to work. I never had real interest in special needs folks. I probably was guilty of ignoring them like most people do. The Lord changed my heart. Something clicked in my head when I visited this one. I was only there for an hour, but it changed my life.”

Though he had no background with special needs patients, he threw himself into the work in 2009. He hired a physical therapist to “volunteer” at the Abrigo Bienestar Integral home to give the patients some badly needed stimuli. He prodded government officials to make ABI less of an institution where patients were kept behind bars and more of a center of joy and improving patients with their social skills.

Today, Waller runs a 12-member staff on a $50,000 budget through Fundaniños, and they serve at a government-funded institution that houses and cares for some 100 special needs patients abandoned or abused by their families.

In eight years of service, he has opened an annex facility that during the day takes some of the higher-functional patients and provides them physical therapy and improves motor and cognitive skills.

Perhaps their most remarkable story of transformation involves their former Tarzan boy, Francisco.

When two police agents spotted him in May of 2010 cowering among the brush of rural Santa Cruz of Quiché, they first thought he was a wolf. He emitted guttural sounds and moved around on all fours. His unkempt, matted hair flowed all over his naked body. Read the rest about Tarzan boy.